Today we went to Texas Children's again to see the feeding expert (yes they exist). She was amazing!!!! We spent two hours working with her and learning and left with some more feeding items (I have included a photo of most of the feeding items that we have been trying)
We learned alot about positioning her and trying to help her along, but it sounds like we need to make the decision in the next few weeks if we are going to have a g-tube (feeding tube) inserted directly into her stomach. It is minor surgery that only requires an overnight stay and will help prepare her for the surgery that will be coming later. Where it takes a normal baby a few minutes to finish off a bottle it can take 30 minutes to an hour to complete a feeding for her because after you attempt to bottle feed then you must tube feed the remainder and to keep her tummy from getting upset you must go slowly. The feeding expert really felt that she had more airway issues than cleft pallet issues.
Monday we will be back for the ENT Appointment (with Dr. Edmonds) he is the Dr. that they cleft pallet team recommended and I will let everyone know what he says, he is going to be looking into her airway issues....
It sounds like you are begining to get the swing of things...she is a beautiful little girl.
ReplyDeleteLove, love, LOVE Dr. Edmonds....he's great!
ReplyDeleteDonna Billeaud
Still praying for you all....hope all the meetings go well.
ReplyDeleteCxx
Hope the appointment goes good! I love to read updates about your family.
ReplyDeletehope the appt goes well! sounds like each day you're one day closer to getting aubrey all better. i know this has been a tough time for you, but you're handling everything like a champ! praying for all of y'all!
ReplyDeletePraying for you and your family. Happy to read that things are going better for you and the little ones.
ReplyDeleteYay! praying for you guys still!
ReplyDeleteWe love Dr. Edmonds too! He is great! Emily I have been reading your blog for a while now and I have been praying for you and your family! Your children are both so precious! Your strength and your faith inspire me!
ReplyDeleteAmy (O'Pry) Pulcher